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Experiences of participating in the 100,000 Genomes Project

  • Overview
  • Recruitment and information
    • What is genomic research?
    • Being invited to the 100,000 Genomes Project
    • What people knew about the 100,000 Genomes project before taking part
    • Getting information about the 100,000 Genomes Project
  • Making the decision
    • Concerns with taking part in the 100,000 Genomes Project
    • Reasons for wanting to take part
    • Deciding to take part in the 100,000 Genomes Project
    • Thoughts on medical research and genomic medicine
  • Process of taking part
    • Giving consent to the 100,000 Genomes Project
    • Giving a sample to the 100,000 Genomes Project
  • Data protection and storage
    • Data protection and sharing in the 100,000 Genomes Project
    • Sample Storage in the 100,000 Genomes Project
    • Thinking about the future after participating in the 100,000 Genomes Project
  • Receiving results
    • What people expected from the 100,000 Genomes Project
    • Contact with the 100,000 Genomes Project after taking part
  • Messages to others
    • Messages for other families about taking part in the 100,000 Genomes Project
    • Messages to Health Professionals and Genomics England
  • People's Profiles
    • People who took part
  • Resources and Information
  • Credits

Experiences of participating in the 100,000 Genomes Project

Resources and Information

There is information about the 100,000 Genomes Project on the Genomics England website. 

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